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GENE THERAPY FOR SMA
US FDA approves Novartis' gene therapy for rare muscle disorderThe US FDA has approved Novartis' new gene therapy, Itvisma, which is for patients aged two and above with spinal muscular atrophy. Itvisma...
Spinal Muscular Atrophy: Indira Gandhi Institute to offer free treatment for childrenKarnataka launched free treatment for Spinal Muscular Atrophy (SMA) at the Indira Gandhi Institute of Child Health in Bengaluru. The initia...
Rs 17 crore for a single dose: Why Zolgensma is world's most expensive medicineThe high cost of Zolgensma, a one-time gene therapy used to treat spinal muscular atrophy (SMA) in children under two, is to limited patien...
GST exemption on medicines for rare diseases is unlikely to provide any relief to those in need: Health activistsThe recent GST exemption on medicines for rare diseases in India is unlikely to help many patients as the drugs are still too expensive, sa...
Imbalance in brain chemicals may be the culprit behind OCD: StudySome people with OCD are engaged in rituals for much of their waking life and cannot even leave their homes. As the condition is difficult ...
Pharma companies' charity hope for kids with rare spinal disorderThe rare disease affects one in every 8,000 children. The bigger problem, according to parents and doctors, is the lack of awareness about ...
Scrap taxes on drug import for spinal muscular atrophy, Stalin tells CentreFor children affected by SPA, gene-therapy has to be ideally given before the child reaches two years of age and this therapy costs over Rs...
Donation call: Rs 4 crore in 1 week can save Ayaansh7 days left to save Ayaansh with 4 crore: Donate on ImpactGuru.
‘Compassionate use’ means life for a fortunate fewDrugs under clinical trials in other countries can be brought to India to treat life-threatening diseases, but prohibitive cost remains a w...