Recent GST rate cuts on critical medicines are set to significantly reduce costs for treatments of conditions like multiple myeloma, lung c...

The Supreme Court has directed social media influencers, including Samay Raina, to appear in court following allegations of mocking disable...

A recent report in The Times of India reveals that Roche may have profited immensely from risdiplam, a drug for spinal muscular atrophy (SM...

The Delhi High Court has ordered Natco Pharma to maintain status quo on the launch of Risdiplam until April 2. Roche, which holds the paten...

The Delhi High Court denied Roche's request to temporarily restrain Natco Pharma from producing its spinal muscular atrophy drug, citing pu...

Diagnosed with spinal muscular atrophy, Archana Vijayan was once told she would never walk. Despite the grim prognosis, her determination, ...

The Supreme Court has temporarily stayed a Kerala High Court order directing the Centre to provide additional funds for a patient's expensi...

Karnataka launched free treatment for Spinal Muscular Atrophy (SMA) at the Indira Gandhi Institute of Child Health in Bengaluru. The initia...

The high cost of Zolgensma, a one-time gene therapy used to treat spinal muscular atrophy (SMA) in children under two, is to limited patien...

"The focus will be on prevention rather than cure. In this, citizens are diagnosed technically to see what diseases they could be afflicted...

The lab was inaugurated virtually by Maharashtra Chief Minister Uddhav Thackeray. Another project- Spinraza therapy for spinal muscular atr...

Since its launch, over 4,000 SMA patients across over 50 countries have benefitted from the drug, Roche said in a statement.

For children affected by SPA, gene-therapy has to be ideally given before the child reaches two years of age and this therapy costs over Rs...

Justice P B Suresh Kumar said the court does not want to interdict the crowdfunding process, but it wants the funds to go to the government...

7 days left to save Ayaansh with 4 crore: Donate on ImpactGuru.

In the new policy, formulated after detailed stakeholder consultations, 'rare diseases' have not been defined but classified into three gro...

Giving a clarification on the issue raised by Congress Vivek K Tankha during Zero Hour on March 17, Sitharaman in Rajya Sabha said the memb...