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Supreme Court seeks Centre's view on creation of corpus fund for treatment of SMA patientsThe Supreme Court is deliberating on the creation of a corpus fund for Spinal Muscular Atrophy treatment. This initiative aims to provide a...- Supreme Court imposes Rs 3 lakh cost on influencers Samay Raina, Ranveer Allahbadia for 'misconduct'The Supreme Court criticized Samay Raina and other YouTubers for their conduct. They were fined three rupees each for taking the court for ...
- Budget relief on the label: Govt proposes to drop duty on rare disease drugsThe Indian budget proposes exempting seven rare disease drugs from import duties. This move aims to lower costs for expensive life-saving m...
- India's Got Latent row: Supreme Court raps Samay Raina over disability jokes, asks Center to consider stricter law like SC-ST ActThe Supreme Court urged the Centre to consider a law, similar to the SC-ST Act, to penalize derogatory remarks against persons with disabil...
- 'Deeply regret the pain caused due to our show': Samay Raina apologises for insensitive jokes on disabilitiesComedian Samay Raina, along with Vipul Goyal, Sonali Thakkar, Nishant Tanwar, and Balraj Ghai, issued an apology for insensitive remarks ma...
- India's Got Latent row: SC orders Samay Raina, others to apologise on social media for ridiculing disabled personsThe Supreme Court has ordered social media influencers, including Samay Raina, to issue public apologies. This is for mocking disabled indi...
- Hate speech can't be wrongly seen as fundamental right: Supreme CourtThe Supreme Court stated that hate speech is not a fundamental right. The court will limit any freedom that facilitates demeaning speech. J...
- Supreme Court summons Samay Raina, others over alleged mockery of disabled; may set social media normsThe Supreme Court has directed social media influencers, including Samay Raina, to appear in court following allegations of mocking disable...
- SC gets tough on Samay Raina, other influencers for mocking rare disorder, seeks their presence in courtThe Supreme Court has summoned five social media influencers, including comedian Samay Raina, following accusations of mocking individuals ...
- India's Got Latent remarks row: Supreme Court directs return of passport to podcaster Ranveer AllahbadiaThe Supreme Court has directed the return of Ranveer Allahbadia's passport, who faced scrutiny over controversial remarks on 'India's Got L...
- Roche made over 100 times the cost of a medicine that it sold in India, calculations show; company defends itselfA recent report in The Times of India reveals that Roche may have profited immensely from risdiplam, a drug for spinal muscular atrophy (SM...
- India's Got Latent row: Supreme Court extends interim protection of Ranveer AllahabadiaThe Supreme Court of India on Monday extended its interim protection granted from arrest to YouTuber and Podcaster Ranveer Allahabadia in t...
- SC takes note of plea alleging Samay Raina ridiculed disabledThe Supreme Court is set to examine a plea alleging that Samay Raina, host of "India's Got Latent," ridiculed disabled individuals. The cou...
- Budget 2025: 'Customs waiver on life-saving drugs won't benefit most patients'Despite the import duty waiver on life-saving drugs for rare diseases announced in the union budget, patients might not benefit due to high...
- GST exemption on medicines for rare diseases is unlikely to provide any relief to those in need: Health activistsThe recent GST exemption on medicines for rare diseases in India is unlikely to help many patients as the drugs are still too expensive, sa...
- Supreme Court dismisses petition seeking removal of GST, customs duty on medicines to cure spinal muscular atrophyCure SMA Foundation of India, a parent-led organisation, had approached the court seeking exemption of GST and customs duty on treatment of...
- Pharma companies' charity hope for kids with rare spinal disorderThe rare disease affects one in every 8,000 children. The bigger problem, according to parents and doctors, is the lack of awareness about ...
- India notifies first policy on rare diseasesIn the new policy, formulated after detailed stakeholder consultations, 'rare diseases' have not been defined but classified into three gro...
- Draft policy on rare diseases looks at Rs 15 lakh aid to the poorIn an attempt to address concerns of patients suffering from any rare disease and reeling under its exorbitant cost of treatment, the healt...
- Govt to come up with financial assistance for fighting rare diseasesThe decision comes as the government comes up with a new draft policy for the treatment of rare diseases, more than a year after it withdre...
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