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FABRY DISEASE
UniQure stock crashes over 50% today after FDA says Huntington’s therapy data isn’t enough - here's what investors need to knowQURE stock price today: UniQure's stock crashed Monday after the FDA declared data for its Huntington's disease gene therapy, AMT-130, insu...- Govt allows global tenders to access 120 key, patented drugsIn what could ease access to some patented medicines, the government has allowed global tenders to be floated for procurement of 120 drugs,...
- Fabry disease: Advocacy group seeks Health Ministry's interventionPatients of Fabry disease in India are calling for equal recognition under the National Policy for Rare Diseases 2021. Advocacy group, Lyso...
- Sops likely for R&D on rare condition drugsIncentives could be offered to the private sector in the form of faster approvals and an extended period of exclusivity for orphan drugs. S...
- No patient benefitted from Rs 50 lakh help scheme to treat rare disease patients: Varun Gandhi to Mansukh MandaviyaIn a letter to Mandaviya, Gandhi noted that the 'National Policy for Rare Diseases, 2021' was launched by the Ministry of Health and Family...
- IGST a bitter pill for patients with rare disorders as medicines attract 5%-12%While life-saving medicines imported for personal use would continue to be exempt from basic customs duty, they are not exempt from IGST.
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